Thalassemic Patients Suffer Lack of Blood
Albanian Daily News
Published May 16, 2018
Head of Albanian Association of People with Thalassemia, Musa Zenelaj has informed Healthcare Commission regarding lack of blood for patients suffering from Thalassemia. Zenelaj has informed that 80% of the adolescences suffering from Thalassemia are in risk from infections and other diseases with the most problematic situation being in Lushnja where "patients are forced to remove their spleen which is damaged due to lack of blood transfusion for a long time".
He continued saying that the medical protocol is not applied and that there are patients that have not done their ferritin blood analysis because there are no reagents. Zenelaj added that most of the patients have their level of hemoglobin at a very law level, "hemoglobin of some patients is 8, 7, or even 6 and 4. I wonder how they live!"
Doctor Eleni Anastasi affirmed Zenelaj's denouncement claiming that patients in Lushnja have a very low level of hemoglobin "and we are assisting them through removing their enlarged spleen due to lack of blood". The replacement of one main medication, Exjade with another medication in the new list of reimbursed medicines only adds to the problem as patients remain skeptical.
According to data, in Albania there are 600 patients suffering from Thalassemia.